Please visit EB Info World 
To learn more about EB

• Information on How to find Individual State Programs
  These programs help low-income families (usually) or/and children with special needs 
  
  

• Information on Insurance Companies and what they cover related to EB patients
  As submitted in the Insurance Survey. You may help us in making this info more thorough by filling out the survey here.

---

Links of Interest:

• Medicare list of contacts
  http://www.medicare.gov/contacts/static/allStateContacts.asp
  
  
• Children's Defense Fund
  http://www.childrensdefense.org
  
  
• To Support Stem-Cell Research
  http://www.stemcellfunding.org/fastaction/takeaction.asp
  
  
• Action on Stem-Cell Research by Individual States
  http://www.camradvocacy.org/fastaction/links.asp   
  
  
• NIH Weighs In
  http://www.washingtonpost.com/wp-dyn/articles/A32390-2005Apr6.html
  
  
• Insure Kids Now!
  http://www.insurekidsnow.gov/
  
  
• Administration for Children & Families
  http://www.acf.hhs.gov/
  
  
• State Children's Health Insurance Program
  http://www.cms.hhs.gov/home/schip.asp
  
  
• How to get low cost/free Health Insurance for kids
  http://usgovinfo.about.com/c/ht/00/07/How_Get_Low_Costfree0962932964.htm
  
  
• Covering Kids & Families
  http://coveringkidsandfamilies.org/
  
  
• Free Medicine Foundation
  http://www.freemedicinefoundation.com
  
  
• Habitat For Humanity
  http://www.habitat.org/

More Links:

• http://votekids.everychildmatters.org/site/DocServer?docID=2325
  
  

• http://www.votekids.org 
  
  

• http://pediatrics.about.com/b/a/122906.htm 
  
  

• http://www.advamed.org/publicdocs/3-9-04_testimony_uninsured.pdf
  

Copyright © Epidermolysis Bullosa Action Network