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EBAN was formed from
the heartfelt desire of the co-founders, who each have their own
inspiration. No board position is compensated, EBAN pays no
salaries. All work, including executive, legal, accounting, development
and administrative, is done on a volunteer basis or at a greatly reduced
cost. It is the goal of the Foundation to
keep
operating costs at minimum so most of the contributions can go directly to
help EB Families.
Silvia Corradin
President,
Webmaster, EB Parent-RDEB
Silvia comes from Northern Italy and now lives in Lancaster, California with
her family. Silvia is the owner/operator of Sleeping Angel
Creations & Services, which among other services, provides
Italian/English translations and graphic work.
Silvia founded the website
www.ebinfoworld.com in 1997. EB
Info World is a port-in-the-storm for those seeking information about Epidermolysis Bullosa.
Silvia’s son, Nicholas
“Nicky” who has has Recessive Dystrophic Epidermolysis Bullosa
(RDEB), is her inspiration for establishing EBAN. Nicky has a little
brother, Connor, who is EB-free. Silvia is EBAN’s webmaster and web
designer extraordinaire. Silvia is also the author of the book "Special Mommy
Chronicles". In the summer 2007 she also put together a book full of
stories of families living with Epidermolysis Bullosa appropriatedly
called "Living with Epidermolysis Bullosa". 100% of
the proceedings from the sale of this new book are directly donated
to EBAN's Quality of Life Program.
Marybeth Sheridan
Vice-President, Treasurer, EB
Parent-RDEB
Marybeth was born in California and now resides in Tampa, Florida, with her husband and three children. Marybeth served as a Director and veteran fundraiser on the Board of DebRA of America for many years. In this role, she has testified before Congress about EB’s many challenges.
Marybeth’s daughter, Samantha “Sam,” has Recessive Dystrophic Epidermolysis Bullosa (RDEB). Sam
is one of only a few documented cases who are allergic to
all oral sedation and pain medications – the level
of suffering she endures is incomprehensible to most people. Sam is
Marybeth’s inspiration for establishing EBAN. Sam has two siblings who
are EB-free, Chloe and James
Jr.
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ADVISORY BOARD COMMITEE (in Alphabetical Order)
Delicia Bolin
EB
Parent-RDEB
Tammy Bradley
EB
Parent-Junctional
 Tammy is from
Las Cruces, New Mexico, where she was born and raised. There she lives
with her husband Gary and their 4 kids: Joey, Bree, Christer and
Jeffrey. Christer and Jeffrey were both born with Junctional Non
Herlitz EB. Joey and Bree are both EB free. Tammy helps her
husband Gary run their Towing/Garage business while taking care of the
kids. Tammy would like to make life better and easier in any way
possible for those
affected with EB by helping EBAN in any way
possible.
Mary Keesling
Nurse
Christine Tenconi
Board Director for the Children Skin Disease Foundation
Francesca Tenconi
Founder of the Children Skin Disease Foundation
Susan Tom
EB
Parent of 2 RDEB Angels and EB Advocate
Mary White
Laboratory Technologist
 Mary was born in Maine and
currently resides in Augusta, Georgia with her husband and 4 children.
Mary was a a laboratory technologist for 25+ years and is currently
working on her BS in Health Information Administration. Mary became
aware of EB when her cousin Nicky was diagnosed with it in 1996. Mary
has seen the debilitating effects of this horrible disease and how
truly strong these children are. Mary is very pleased to be a part
of EBAN and to help out in anyway she
can.
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